Tuesday September 4, 2012, we began another part of this journey. My son woke up with a bad headache. We gave him the headache medicines, but it did not take away the headache. We went to our scheduled clinic appt early. That was the fastest clinic appointment we had since this roller coaster ride began. They gave him 3 doses of a stronger medicine and sent us home. the headache persisted along with a lowercase fever, weaning appetite of a boy who eats very well, not drinking hardly anything and not urinating much. I am concerned.
Wednesday September 5, 2012 my Buddy has a fever of 100 degrees and has to go back into clinic to get antibiotics. They send us home and on the ride the bumps in the road hurt his head. 😦
Thursday September 6, 2012 still not feeling good we power through and go to Physical Therapy. She finds changes as we had and wanted to let his Doctors know what changes she noticed, we agreed.
Friday September 7, 2012 my son still has headaches. His appetite is minimal, a bite here or a sip there. No full drinks, no full meals, not asking for snacks. My concern grows.
Saturday September 8, 2012 we have a plan to go have some fun. To begin we are going to McDonalds for lunch. He requested getting a rain check on the fun part and wanted To go back home because the ride was hurting his head. 😦 We went home. We went for a walk, saw a neighbor chatted and went home. It was then we noticed that a screw holding the clips in his skull was exposed. I text a picture to our doctor, we went to the bathroom and turned around and got back in the van and went to the ER. Not much results at our ER so we transferred to our second opinion hospital Sunday morning.
diaryofacancerdad 